Coping with Essential Tremor

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@essential tremor.org: about IETF: Sites of Interest

	The links on this page will take you to additional sources of information, including online pharmacies.
	Parents With Disabilities and Teenage Children
	Through the Looking Glass Through the Looking Glass, a national resource center for parents with disabilities, is a community-based nonprofit organization that is conducting a nationwide project to learn more about families in which a parent with a disability is raising a teen (11-17 years old). The U.S. Department of Education's National Institute on Disability Research and Rehabilitation funds this project. Parents and teens alike may take part in the survey. Call (800) 644-2666, TTY (800) 804-1616, or rquest a survey by email tlg@lookingglass.org
	Help Raise Funds for the IETF
	CauseLink www.Drugstore.com Receive special discounts and offers on merchandise each month. As an affiliate, for every dollar you spend, IETF receives a portion of the money as a charitable contribution. www.expressgroup.co.nz Discount drugstore. www.stamps.com For all your postal needs. As an affiliate, for every dollar you spend, IETF receives a portion of the money as a charitable contribution. www.Hertz.com As an affiliate, for every dollar you spend with Hertz car rental, IETF receives a portion of the money as a charitable contribution. www.globalrx.com International pharmacy providing USA approved medications worldwide. www.amazon.com For every dollar you spend on purchases at Amazon.com, when you click on the link here, the IETF receives a portion of the money as a charitable contribution. Charitable Donation Library on the Net: Raising funds and awareness for ET through charitable contribution sites. Please visit and make a pledge on behalf of yourself, a friend or a family member. www.createhope.org www.webcharity.com www.charityamerica.com www.essentialtremor.org
	Surgical Procedures
	www.elekta.com Gamma knife surgery www.medtronic.com/neuro/tremor Activa Tremor Control Therapy
	Other Support Groups
	http://www.egroups.com/group/etchildren Or E-mail to tremor@yahoogroups.com or slw36@yahoo.com Parents of children with ET http://groups.yahoo.com/group/tremor Or E-mail to ETchildren@yahoogroups.com ET Internet support group http://groups.yahoo.com/group/DBSsurgery/ Discussion of deep brain stimulation surgical procedures
	Other Neurology Sites
	www.diseases-explained.com/EssentialTremor/index.html Check out this comprehensive online newsletter from Lexi-Comp. www.parkinson.org National Parkinson Foundation, Inc.. www.wemove.org The Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activites on the Web. www.neurologychannel.com The internet's most comprehensive resource for neurology-related consumer healthcare. www.healthlink.mcw.edu Information in neurological disorders from physicians of the Medical College of Wisconsin. www.sfn.org Society for Neuroscience www.dana.org Charles A. Dana Foundation - Dana Alliance for Brain Initiatives
	General Healthcare Information Links
	www.drugs.com A convenient, unbiased and reliable source of drug Information. Of particular interest is the drug interaction program, the Pill Identification wizard and image library, as well as drug information listings presented at both professional and consumer levels. www.health.gov/nhic/pubs/default.htm Access to a National Health Observances annual planning guide, federal health information centers and clearinghouses with Web links and telephone numbers for federal health information and referral services, by topic – plus toll-free numbers for health information, including both federal and nonprofit organization, again by topic. www.medicalbooks.com Largest medical, technical and scientific online bookstore. They have more than 90,000 titles of books, multimedia and databases in stock. www.familycareamerica.com Check out this really excellent site. www.PatientTravel.org No-cost, long-distance medical air travel is available from the national Patient Travel Helpline. Phone: 1-800-296-1217. www.drkoop.com Empowering consumers to better manage their personal health with comprehensive, trusted information. www.medinex.com The goal of Medinex.com is to provide the safest health search for medical information available on the Internet. By partnering with disease-specific organizations that are the experts in their field, Medinex.com becomes the sage medical portal for hospitals, physicians and their patients. www.bcia.org For some individuals, stress can temporarily cause an increase in tremor symptoms. Some individuals with tremo have found that biofeedback has helped in the reduction of stress. For a biofeedback specialist near you, visit aapb.org and search by area. It is advisable that you call the office to find out if the biofeedback specialist has experience treating patients with tremor before you schedule your appointment. www.webmd.com www.alyshia.com/opca Information on the condition known as OPCA - Olivopontocerebellar Atrophy www.orthostatictremor.org One individual diagnosed with orthostatic tremor provides personal experience and information www.hcfa.gov Medicare and Medicaid information www.geneticalliance.org Genetic Alliance www.familiesusa.org Families USA www.hhs.gov Medical Records Privacy Act www.medicaljourneys.com Health History Form www.nfcacares.org National Family Caregivers Association www.nhgri.nih.gov National Human Genome Research Institute's Online Genetic Glossary www.igm.nim.nih.gov National Library of Medicine www.selfhelpnetwork.wichita.edu Center for Community Support and Research, Self-Help Network of Kansas www.hopelink.com Clinical trial flight service for patients www.angelflightamerica.org Charitable medical air transportation services
	Disability Information
	www.disabilityresources.org Disability Resources, Inc. is a national, nonprofit organization, based on Long Island, New York, which has provided information about resources for independent living since the inception of its award-winning print newsletter, Disability Resources Monthly, in 1993. www.ncmedical.com Functional Solutions - Weighted utensils. Can also be reached at: NCM Consumer Products Division / San Jose, CA / 1-800-235-7054 www.ed.gov/offices/OSERS/NIDRR National Institute on Disability and Rehabilitation Research (NIDRR) 400 Maryland Avenue, SW Washington, DC 20202-2572 Phone: (202) 205-8134 TTY: (202) 205-9433 (NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment and independent living of disabled individuals of all ages. www.naric.com The National Rehabilitation Information Center Serving the Nation's Disability Community (NARIC) 1010 Wayne Avenue, Suite 800 Silver Spring, MD 20910 Phone: (800) 346-2742 or (301) 562-2400 TTD: (301) 495-5626 Fax: (301) 562-2401 NARIC is one of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the internet. NARIC's literature collection, which also includes commercially published books, journal articles and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures. www.invisibledisabilites.com
	Research Information
	www.clinicaltrials.gov ClinicalTrials.gov provides patients, family members and members of the public easy and free information on clinical studies for a wide range of diseases and conditions. www.ninds.nih.gov This site provides access to the most recent biomedical research publications concerning human subjects.